Wednesday, August 31, 2011

Trying it again...

We started out early this morning going to the Concussion Clinic at the U.  After tests and stuff, they think Kauri should keep doing what she's doing... NOT OVER DOING IT.  The don't think she should be going to school for the full day.  So we'll just keep doing things day to day, like we have.  She has to go back in 3 weeks.  She has to go to some therapy to help her, but it will be in Bountiful, so that will be much better.
While taking some of her tests, she'd say, "Dang it" or "shoot" or "oops" or "what?" or "Oh great".  It was too funny.  Mom started Tallying her.  She said "Dang it" 15 times and "oops" 5.  At one point mom burst out laughing, because she was working so hard on the test, and then it would correct her.
How's your balance?


 Then we went to her Dr. at Primary Children's.  Since her labs were taken yesterday, it was just to talk about what approach to take now.   Even though her levels are high, he says he thinks we should play with fate, and try her on the liquids and no fats.  Just kind of play with it.  If she's not "symptomatic", we'll just keep adding stuff.  But if she get symptomatic (sick) then we need to slow down or stop food.  So she needs to really tell us how she feels.  Hopefully, if she's nice to pancreas and doesn't over do, it'll be nice back.  She still has to be on the TPN and Lipids so she still has Marty, probably for the next week, but Marty with food is almost bearable for her.  With her levels high, but she feels okay, we're hoping to trick the pancreas and help it think it's not mad. ? . ?

Kauri was so happy, she was smiling from ear to ear walking through the hospital.  We stopped at the cafeteria again to buy her a Sprite.  When we got out to the parking lot, she said, "I'm so happy!  Can I drive home?"  Mom bust her bubble by gulping and saying, "Um, we'll go find an empty parking lot, later... a lot later.... "  It was all pretty funny.




1 comment:

  1. YAY for sprite again! I am so happy for you. I am triple crossing my fingers that Mr. Grumpy Pancreas will cooperate. You look SO SO SO cute in these pictures Ms. Kauri. I love you.

    ReplyDelete