Keeping on keeping on...

Not a lot has happened since last Thursday.  Kauri just can have NO food, liquid, NOTHING by Mouth (The Dr. calls it NPO - "nil per os"--literally mean mean "nothing by mouth.") We are learning all kinds of medical terms and procedures.  We never dreamed we'd be changing TPN  (Kauri's nutrients) and doing all this nursing stuff.  It's amazing what we're learning.
So that is about it, on the what is going on.
We moved Annika's stuff up to Logan on Saturday.  And she left to move up there yesterday, after we had her birthday party.  It was a tough time.  Annika has been such a support and help to Kauri and Mom, that it's going to be more hard to have her go, this year, because of all of her help through this last month.  So there were mounds of tears through the day yesterday.
Today, she went to 3 periods of school, then went to FJH to help with a fund raiser for Gabe. 
She gets to be off her PICC line for 6 hours a day.  She gets very hungry during those 6 hours off.  You would think it wouldn't make a difference, but she can tell a HUGE difference after a few hours off.  (Not that she's not hungry anyway, but famished by 6 hours.)  They still give her the same amount of TPN and Lipids, but just the pumps pump faster.

A month now of no food, except those couple days of clear liquids and no fats.  Kauri just keeps on keeping on...  she's amazing.

Getting all ready to shower.

It's good you can't see the tears so much on this picture.

At Farmington Jr. High with fund raiser for Gabe.