Hangin' in here...

Well, it's been a few days, but not much has happened, which is good.  On Monday, Nancy the Home Health Nurse came and drew blood.  Kauri's Lipase levels went down to 719 from the 1175.  And her Amylase went down from 168 to 147.  220 is high lipase levels and 110 is high amylase levels, so we still have a ways to go.
We're still trying to get her to a GI specialist, or someone specialized in this pancreas stuff.  We even talked directly to Dr. Black (the Dr. that has been over her through all this accident stuff).  He's a General Surgeon at Primary Children's, and since this has been going on so long, we're ready to get a little more specific.  But he hasn't done very good about getting us directly to a Dr.  He said he could, but maybe he's doing non-stop surgeries for the last week, OR is on his 2 week vacation.  So it's a little frustrating, but we're learning how to deal with frustrations through this last 2 months!
Kauri is feeling better.  Her tummy still hurts now and then, but she hasn't had nausea again... yeah!
We through in another Dr. appointment among all the others... the DENTIST!  And she has some cavities.  I guess she likes to keep going to visit all these nice Dr's. I guess.

Kauri is getting more and more caught up on her school work.  Her Home Hospital teacher came again today.  They laughed pretty hard.

Today, her dressing on her PICC line about fell off, so this was the day to learn to do that among all the nursing skills mom has.  Always an adventure...

Cleaning it good.

Serious stuff...

We did it!  (I think we only missed one step!)  But we were clean!

The nurse cleans up here.  When the Home Health nurse comes, mom has to clean up after her, too.

We had a nice lunch with Grandma Tye today.  It was nice for Kauri to actually go out to eat and be able to eat.  We took some great pictures, but somehow they were deleted.  Just know, Grandma belongs here on the blog.  Kauri loved spending time with her!