Kauri had her labs done last week, on Tuesday, the 25th. After two weeks, they've gone down a whopping 100. Yes, it's good they're coming down, but it's so slow. She went from 769 to 653, on her Lipase, and her amylase went down better from 150 to 121. The normal is 30-110, so that is getting there, but her amylase never was super high.
We are so excited they are coming down, but she has a lot of pain. It's pretty regular. Pretty much when she eats. Those weeks she didn't eat, she never had stomach pain. Now, 3 weeks after the PICC line is removed, she has tons of pain. It's so hard for us to see it, and worries us, but as Kauri puts on her beautiful smile, and she herself tries to not focus on it, we just keep on keeping on. It's hard though for her. She will hunch over in pain, that at times she has said is a 9 on the pain scale. 10 being the worst. She smiles and says, "but mostly the pain is a 3-5". That still is hard on us, to know she's not out of the woods yet. But if her spirit and attitude helps anything, we shouldn't be on the down hill side of this. We all hope so much she can quit having so much pain. That pain also leads to other things that complicate this whole situation as well.
Kauri's spirit is good, she excited to get back to living, and is being tough about her stomach. She's amazing!
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